ChrisF Posted July 13, 2021 Share Cois, Robbie het ons gedagtes, en emosies, mooi saam gevat. Woorde voel so leeg in sulke tye .... weet net ons bid vir julle albei. LBKloppers, Scary Rider, Cois and 3 others 6 Link to comment Share on other sites More sharing options...
Cois Posted July 19, 2021 Share Went to see the oncologist last week. Bloodwork seems normal for what is taking over my body. i could not start chemo due to the weight loss I experienced. The oncologist recommended that we might have to wait a week to see how my body reacts to the liquid diet. The biggest problem is that I vomit out 90% of the foods I take in. Last night was the worst. I did not eat anything yesterday only took in liquids (decade coffee, and Rooibos tea and some water) just before bedtime I ran for the bathroom. Everything came out. Drank a bit of water and headed back to bed (we fall under the part of Pretoria with no electricity since Saturday night) attempting to fall asleep. Woke up at 01h00 and ran for the bathroom again. Had to run back to get a flashlight, and vomited out some water. Went back to bed and was woken at 03h30 and had to do the run, run back, get a flashlight and vomit out the last bit of liquid my body could expel. Was awake till 04h30 when Reinet woke up to start the shower in cold water to get ready for work. At work today just after 13h00 I had to dash to the bathroom (at this stage I am doing Tech, reception and client liaison due to people having Covid exposures) again, making it just in time. Dinner was Sago in drinking form that Reinet prepared on Saturday. So I really hope it stays in. Weight this morning was 70,2 kg’s I have to see the oncologist on Thursday for assessment and to see if I should start or rather can start treatment. That and the booking for my Covid vaccination on Friday morning is two goals for this week for me. NicholasT, burger 555, Steven Knoetze (sk27) and 5 others 8 Link to comment Share on other sites More sharing options...
Scary Rider Posted July 19, 2021 Share Sterkte, Cois. Jy bly 'n inspirasie vir ons almal. Ons bid vir jou! Robbie Stewart, Wayne pudding Mol, Moolz and 3 others 5 1 Link to comment Share on other sites More sharing options...
Mats Posted July 20, 2021 Share Wens ek het woorde gehad wat jou kan laat beter voel. Sterkte Cois Cois 1 Link to comment Share on other sites More sharing options...
Muttley Posted July 20, 2021 Share You've got this! Cois, BigDL, Scary Rider and 2 others 5 Link to comment Share on other sites More sharing options...
BigDL Posted July 21, 2021 Share Hope all goes well with your appointment tomorrow lad and that treatment can start. Cois and Moolz 2 Link to comment Share on other sites More sharing options...
The Ouzo Posted July 22, 2021 Share Everytime I read your updates I'm heartbroken. Your never give up attitude certainly puts other ailments into perspective. Cois you are always in our minds. Sterkte. Incidentally my elderly neighbour has also been going through chemo and radiation and what not over the last few years. 2 days ago I learnt that he had decided to stop with chemo and let nature takes its course. This was apparently in January already, but since stopping chemo he has put some weight back on, is not retaining water, can keep meals down and is feeling better over all. Obviously the disease is silently doing its thing inside him, but he feels that he would rather live fewer days comfortably than more days but being sick and weak. Dexter-morgan, ChrisF, Steven Knoetze (sk27) and 3 others 6 Link to comment Share on other sites More sharing options...
Cois Posted July 26, 2021 Share We postponed the chemo session until later this week. I went for my Covid Vaccine on Friday, and the chemo would kill the effects of the vaccine. The past weekend I could not keep any food down. So I am very weak, and it is very difficult at the moment to walk. I was without my pain meds the past weekend, and that was the worst idea ever. So last night I had the pain patch on again. I could not get my morphine prescription filled at Dischem Menlyn as the do not have morphine powder to mix my morphine (have to back on morphine as that is the only medication that will work and not cause anymore damage, even though I am allergic to morphine) The worst thing at this stage is knowing that I am going to be sick if I drink something. Even eating something just can’t stay in. And weight loss is my biggest enemy right now! Edited July 26, 2021 by Cois Muttley, ChrisF, Karman de Lange and 3 others 6 Link to comment Share on other sites More sharing options...
Cois Posted August 2, 2021 Share So we started the next round of Chemo last week. 5FU chemo pump, and a derivative of 5FU per IV. Friday was not to bad. The steroids they gave me still worked. Saturday morning felt a bit weak and Saturday morning was hit by the biggest wave of tiredness. But in floored. Had to make a few stops at the shops for water (I can't drink the tap water in Pretoria anymore) and bought a Gluten free bread, just to have something else to eat than Ensure and smoothies. Felt lethargic in the shops and decided that I did not want to pass out in the shops so I told the wife that it was time to return to home as I was not going to make it. Was locked on the couch most of yesterday, got into bed at 21H20 and fell asleep till 05H00. The one positive of the chemo is that it causes diarrhea, but the downside is dehydration. But at least I wont have a blockage. Another problem with the 5FU is hiccups. I hope I still have some medication for that at home. Or it might be hell for the next few hours. And just realized that everyone knows better about how to treat hiccups. Even though I tell them home remedies will not help, they still insist that it will work. So tired of people thinking they know better. This is not my first rodeo with 5FU and the dreaded hiccups HdB, Scary Rider, NicholasT and 3 others 3 3 Link to comment Share on other sites More sharing options...
RobertWhitehead Posted August 2, 2021 Share 6 minutes ago, Cois said: So we started the next round of Chemo last week. 5FU chemo pump, and a derivative of 5FU per IV. Friday was not to bad. The steroids they gave me still worked. Saturday morning felt a bit weak and Saturday morning was hit by the biggest wave of tiredness. But in floored. Had to make a few stops at the shops for water (I can't drink the tap water in Pretoria anymore) and bought a Gluten free bread, just to have something else to eat than Ensure and smoothies. Felt lethargic in the shops and decided that I did not want to pass out in the shops so I told the wife that it was time to return to home as I was not going to make it. Was locked on the couch most of yesterday, got into bed at 21H20 and fell asleep till 05H00. The one positive of the chemo is that it causes diarrhea, but the downside is dehydration. But at least I wont have a blockage. Another problem with the 5FU is hiccups. I hope I still have some medication for that at home. Or it might be hell for the next few hours. And just realized that everyone knows better about how to treat hiccups. Even though I tell them home remedies will not help, they still insist that it will work. So tired of people thinking they know better. This is not my first rodeo with 5FU and the dreaded hiccups Good luck sir, I am holding thumbs that this round kicks some butt. PS: on the hiccups front, have you tried holding your breath? ????????. Sorry, I had to add some humor ???? Scary Rider and Cois 1 1 Link to comment Share on other sites More sharing options...
BigDL Posted August 2, 2021 Share 57 minutes ago, Cois said: So we started the next round of Chemo last week. 5FU chemo pump, and a derivative of 5FU per IV. Friday was not to bad. The steroids they gave me still worked. Saturday morning felt a bit weak and Saturday morning was hit by the biggest wave of tiredness. But in floored. Had to make a few stops at the shops for water (I can't drink the tap water in Pretoria anymore) and bought a Gluten free bread, just to have something else to eat than Ensure and smoothies. Felt lethargic in the shops and decided that I did not want to pass out in the shops so I told the wife that it was time to return to home as I was not going to make it. Was locked on the couch most of yesterday, got into bed at 21H20 and fell asleep till 05H00. The one positive of the chemo is that it causes diarrhea, but the downside is dehydration. But at least I wont have a blockage. Another problem with the 5FU is hiccups. I hope I still have some medication for that at home. Or it might be hell for the next few hours. And just realized that everyone knows better about how to treat hiccups. Even though I tell them home remedies will not help, they still insist that it will work. So tired of people thinking they know better. This is not my first rodeo with 5FU and the dreaded hiccups Sterkte - Hope the Hiccoughs get better soon. Cois 1 Link to comment Share on other sites More sharing options...
Muttley Posted August 2, 2021 Share Hope the side effects of the chemo are worth it in the long run mnr! Keep fighting the good fight - we're all rooting for you! Cois 1 Link to comment Share on other sites More sharing options...
Escapee.. Posted August 4, 2021 Share Baie sterkte Cois! Steven Knoetze (sk27), ChrisF and Cois 3 Link to comment Share on other sites More sharing options...
W@nted Posted August 9, 2021 Share Hoe gaan dit daar Cois? ChrisF and Steven Knoetze (sk27) 2 Link to comment Share on other sites More sharing options...
Cois Posted August 10, 2021 Share 10 hours ago, W@nted said: Hoe gaan dit daar Cois? Thanks for asking W@nted At the moment things are trough. I have never been this weak. Weight-loss is still a huge problem. The scale said 65.6 kgs this morning. Had to go shopping for new clothing as nothing fits anymore. Has the first proper meal last night. A piece of Lasagna. Glad to say it stayed in with help of Zofer (anti nausea medication) On Thursday I will have the 2nd round of 5FU Chemotherapy if my bloodwork and liver function is still correct. I made the epic mistake of attempting to reduce my pain medication (I have a system that works for a week in the form of a plaster) needless to say, last night was a sleepless night. So will be on pain medicine from now on. It helps a lot with my upper back pain where the chemo dissolved the pads between the vertebrae. Karman de Lange, Robbie Stewart, ChrisF and 6 others 2 2 5 Link to comment Share on other sites More sharing options...
BigDL Posted August 10, 2021 Share 7 hours ago, Cois said: Thanks for asking W@nted At the moment things are trough. I have never been this weak. Weight-loss is still a huge problem. The scale said 65.6 kgs this morning. Had to go shopping for new clothing as nothing fits anymore. Has the first proper meal last night. A piece of Lasagna. Glad to say it stayed in with help of Zofer (anti nausea medication) On Thursday I will have the 2nd round of 5FU Chemotherapy if my bloodwork and liver function is still correct. I made the epic mistake of attempting to reduce my pain medication (I have a system that works for a week in the form of a plaster) needless to say, last night was a sleepless night. So will be on pain medicine from now on. It helps a lot with my upper back pain where the chemo dissolved the pads between the vertebrae. Vok, so sorry to hear about the suffering lad. Cois 1 Link to comment Share on other sites More sharing options...
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