Cois

No! I don’t know what to say. I am so sorry. I hate cancer!

This was the inspiration of what happened today... I got my fat behind on the bike and did the 11km of CowHouse! Might not seem like a lot, but was monumental for me. At 6 km’s I started getting a huge headache, but pushed on to complete the 11km. Was glad to see the shade as the sun was a little warmer than expected. I spotted this as well I needed to get out. Had been house bound from Sunday due to the headaches caused by the chemo meds. And it was either that or murder that I was contemplating. So feeling lots better. Will have to get out again.

I have to watch the movie again. Remember the first few minutes and woke up somewhere in the middle of the movie. I needed the sleep so not a huge loss.The fights were crazy, but good. Watched the new Aladin movie. Was kinds cool, just missed Mr Robin Williams in the movie. And was shocking... I still remember all the bloody songs from Aladin. Just had to wonder if it was more a Hindi movie than a Arab movie. Wonder if the Americans know they are not the same people.... Secret Life of Pets 2 was cool. Better than the first. Got distracted in the middle part of the movie, but there were a few more funnies to this one to the last one... loved the part where the one pup had to poo and was instructed to find a shoe...

Chris, they started me on Avastin for 4 rounds. It is still very expensive. Think in the region of R35000 per session. But know there are some crazy expensive treatments out there. If this helped a bit I want them to cut out the tumor. If it did not work, I still want them to cut out the tumor. It is much better than the other treatments. Erbitux nearly killed me. 5FU nearly killed me. Just glad the doctor spotted that my liver was being damaged and stopped the treatment. And glad that the medical aid also requested a MRI to see if it was working. The only side effects this far, is a very upset tummy, nose bleeds and burning eyes. But that is it. I limited my food intake yesterday to help settle my tummy.

So yesterday was a total mess. Walked into the ward with troubled as my feet are killing me. The nurse gave me a quick over and said we are going to have to consult the doctor. Now I have been having bit of trouble with my hands over the past few days, but as she took my hands in hers, I saw the problem. My hands were red like tomatoes. So consulted the doctor, they were not sure why my skin was still covered in a rash from the Erbitux, my feet took a huge beating from the last round of chemo and resembled my hands. So we did the Biological treatment yesterday, after I had to pay almost R7000 because the medical aid was exhausted, and stopped the Pecaset treatment back with one week to give my hands and feet recovery time. With that I have to be off my feet to try to ease the stress on my skin, and I have to moisturize it during the day. Same with my hands. The chemo attacked my hands and was the cause for the redness. Today it is less red, but still painful. So I am attempting to take it slow, but there are a lot for me still to do. But the sleep monster is on my heels. Can feel it creeping closer and closer every moment. Oh and was shaken a bit. Asked the doctor if I can stop taking the beta blocker to get my heart rate up a bit so that I could get on the bike and spinning bike and push it a bit. And the reply was a bit of a shocker. He asked me how fast I want to kill myself. The stress chemo puts on the body is huge and the beta blocker help the heart cope with all the stress by lowering your heart rate. So will have to take it very slow and steady. I can cycle now, just have to protect my skin from the sun and take it very slow. And find a way to sit on the seat without aggravating the tumor.

To the person who sent me the drone! Dude or dudette... Thanks. Thanks is not enough... I lack the vocabulary to say thank you. I received a call from a company asking for my details. I thought it was a recruiter making sure of my details. Received an SMS for a package but did not think much of it. During the chemo session this morning, security phones me, I have a package. So asked them to receive it as I am waiting for another delivery. Received an SMS from a courier company and states that my delivery was done. Got to security and got a box. Details are my name and number. The address label has been removed. So open the box and in there is a sealed refurbished DJI Mavic Air drone. And the Flymore kit. I spoke to a few people about drones and how to add the drone footage as an added extra for the photo ideas I have (taking photo’s of cyclists) So if you are a Hubber! Thank You! Merci! Dankie! X infinity!

Started, but not a fan of the bloke in it. Still have nightmares of him in Call of Duty [emoji23]But might be something to try again

This must be one of the favorite series to watch! And having worked at such an hospital some of the things you see here is portrayed in the series as well. Going to sound silly but longing for the politics at an academic institution. Always fun to watch if you are an outsider...

No problem at all. Glad to give updates. My memory is shot and forgetting even the most mundane things like eating or drinking water, and lets not mention pills... That is correct, the doctor said that the cannabis oil has been shown (according to research) to lessen the effectivity of the chemo medication. So stopped using on his advisement. He is suppose to know best after all. The one thing about South Africa is that we are thinking like the police of the USA in non legal states. They have one view of weed and one view only. Okay a lot of people use weed for recreation, but they are single minded that all weed equals high people. And to be honest THC oil is the only thing that works for my nausea and CBD helps with my neuropathic pain and the seizures that started again now. I can feel a little energy returning every day. Only huge problem is the amount of sleep that I get in every day (less than 4 hours some days due to the chemo) as the sleeping pills get me to sleep but a wake up after taking the pills and then it becomes a battle to sleep.

Hi Gogo@ At the moment I am on a cleaning up week. Getting treatment next week again. The sleep monster caught me today just like yesterday. Can’t stay awake no matter what I do. Been having the worst neuropathy this past week, the seizures are also starting to worry me (started after a week of not using cannabis oil) so will ask the doctor what I should do as the oil helps with the neuropathy and seizures). The neuropathy is a dull constant pain in my hands and feet. Using a keyboard is on pain level 9 out of 10 for it., and walking is very very painful. But other than that I am doing okay. Dropped my glasses today because of the neuropathy and broke the frame. But will deal with the frame with some glue. Need to get a checkup as my glasses no longer works since the chemo treatment. But will wait for the treatment to end before I get new glasses.

Company the call came from is GS Recruitment. Can’t find the paper with her name on it. I did some cleaning and must have been one of the papers I threw out. +27 12 997 2632 1st July 2019 15h50. Might be because it was just before knockoff time that she decided to take it out on me for wasting her time. But on the first page of my CV I made it clear that I have stage 4 cancer.

think this is a good idea.Thanks Eddy Gordo. Will see if I can find the details and will let them know

She works for a company and I am afraid that the company would loose business and then there are other people that I hindered in getting jobs. That is my problem that I am sitting with.One day she will have to give account for her actions.

I think the biggest is not the money, it is to be busy at this stage. You can only try to clean the house so many times per day. I don’t even see going after this recruiter as a endeavor worth wasting any energy om. It just saddens me that people will phone you, give you little hope and then plunge you into a pool of her acid.

Every morning I wake up, is one night that I did not die in my sleep. The newest thing is seizures at night. My watch picks it up as time that I was awake. It sucks to wake up with your wife attempting to wake you up. Every day for me is a gift and I want to use that gift to no 1 help my wife and no 2 help others. My field I am in is to help people with a problem, to sort that problem as fast as I can to get that person up and going again. Yes I can’t go outside and spend time in the sun, I have a hole in my stomach that I have bowel movements through, but I can work around it. But people are some of the weirdest things around. As soon as some hear you have cancer they treat you like you asked to get cancer. Some people are just the opposite. And then you get the people that are in the mind of just get it fixed. And I wish it was that easy. But it is not. It is tough! I have great friends that is building me up every say. Most of my family went all distant when they heard I have cancer, and that hurts a lot. But day to day it is my battle. A battle against my mind, my body and my thoughts.

Sorry for my language, but **** Cancer and **** Recruiting companies Got a phone call from a recruiter from Pretoria near Moreletapark a few days ago. Asked me a few questions and then went straight for the kill shot. What does your treatment entail. So told her about the one day off every two weeks to get the needed medicine and then just one afternoon to remove the pump that I had to use, but can be done at home. So here is the short of the ******* recruiting bitch: Oh, that is not going to work for this company. They need someone full time and they will not be able to give you time off for treatments. They need someone that can always be there. Please remove your CV from (what ever job hunting page) because you are wasting the recruiters time, the companies money and your time. No one will give you a job. Stop looking for a job and focus on healing. And when you are healed phone me and load your CV on job pages. But stop looking for work, because you are not going to get a job! I am still so mad about this call that I had to get it off my chest. How can a person tell someone to stop looking for a job? Yes I have cancer, it is bloody expensive to treat and you need money to pay for treatments. I need money for food, petrol, phone bills, electric bills, my car payments and rent. Do not come and tell me to stop looking for work! I mean WTF? I am still able to work, yes there are some challenges, but do not tell me that I will not get a job and that I should stop looking for a job!

Thanks Robert[emoji22] I started cleaning my study this afternoon (study doubles as my bike room / bike workshop. I have not cried this much in a very long time. The music I listened to did not help either. I miss being on the bike!

Thanks, will look into it. Need something to watch at night with the SO It’s always sunny in Philadelphia is not my cup of tea. Watched most of season one and yeah, might skip the rest

Thanks. Could not understand why I can’t push it on the spinning bike. And even walking became a huge challenge as I can’t get my heart rate up at all. So getting out of my house and back into my house is by far the biggest challenge every day.

New Amsterdam? Something worth watching?

I have two pills that I was told to drink in the afternoon as well, but glad I check with the pharmacist who told me it is not needed. It is a beta blocker to slow my heart down, and lower my blood pressure, but I suffer from low blood pressure, so not a good idea to take it 3 times per day

It is a white little bugger.I tried skipping drinking the pill because of the taste.

Will give that a go. Will help not to grab the nearest sweet thing to eliminate the taste. Thanks Mate. And thanks for the belated b-day wish. Really appreciated

That must suck. One thing I wish they can do is make all tabs to work on the same ground.The one tab must be taken 1 hour before meals, one 30 minutes before, the 4 pinkish pills are 30 minutes after a meal, and the one that is green and cream must be two hours after a meal. Took all the pills at the same time as I had severe nausea, so my meals were in liquid form and then having to swallow pills at some intervals does not work at all. And they all can work together. Know it might not be the best, but don’t want some pills to get in the water system as they are the worst pills and most toxic things (after the morphine and other opioids in my house) I have to drink and handle every day.

Would be great, but for this... Of course, cancers do not routinely go away, and no one is suggesting that patients avoid treatment because of such occasional occurrences. “Biologically, it is a rare phenomenon to have an advanced cancer go into remission,” said Dr. Martin Gleave, a professor of urology at the University of British Columbia. I wish the cancer I have can just disappear. Just getting a fair chance in the labour market will be a great boost.