Cois

That must suck. One thing I wish they can do is make all tabs to work on the same ground.The one tab must be taken 1 hour before meals, one 30 minutes before, the 4 pinkish pills are 30 minutes after a meal, and the one that is green and cream must be two hours after a meal. Took all the pills at the same time as I had severe nausea, so my meals were in liquid form and then having to swallow pills at some intervals does not work at all. And they all can work together. Know it might not be the best, but don’t want some pills to get in the water system as they are the worst pills and most toxic things (after the morphine and other opioids in my house) I have to drink and handle every day.

Would be great, but for this... Of course, cancers do not routinely go away, and no one is suggesting that patients avoid treatment because of such occasional occurrences. “Biologically, it is a rare phenomenon to have an advanced cancer go into remission,” said Dr. Martin Gleave, a professor of urology at the University of British Columbia. I wish the cancer I have can just disappear. Just getting a fair chance in the labour market will be a great boost.

Last week the nurse had to give me 3 tabs to drink. Two for headaches and one to avoid an allergic reaction to the chemo.She gave me one, and wanted me to drink the one Paracetamol filled pill. I asked her if I can drink all 3 at once (chemo makes me pee like you wont believe, but they run all the drugs via IV’s) She was surprised that I gulped all 3 pills down without flinching. Most people can’t drink more than one pill at a time. BUT, my sleeping pill I drink on it’s own. It is the nastiest little pill that starts to dissolve as soon as it passes your lips. It is a mission every night to swallow it fast enough. I still have to find the trick with that little bugger.

What just a normal morning looks like. At night it is almost the same. Just one tablet less and only half a sleeping pill. For some reason chemo keeps one awake. And after 4 days of not sleeping I asked the doctor for help. And he was astounded that the other doctor overlooking my case did not prescribed me sleeping meds. Also got a little nasty surprise yesterday. A R8400 bill for a Single (K-RAS marker) blood test. The doctor did not give them my correct details to Lancet so I never received a bill. Only because they could not give the correct e-mail details or the correct medical aid details to Lancet. So hope that the medical aid will pay for the test.

and yet the age at what people get cancer (colon cancer in this instance) increased by a huge margin on the age groups of 20-40 year olds. The number of days where people post on Reddit and Facebook of new diagnosis in this age group is just shocking. Most people getting a ostomy are people my age. The one sister said they get about 60 new patients per week and most are either colon or rectal cancer and most are in my age group

Thanks ChrisF It is real hard. But glad I do not have to pass the kids wards. When I worked at Steve Biko I was wrecked the day when I had to do a replacement at the children oncology ward. The person I went to see got me a box of tissues. I just have a very soft spot for children that does not deserve to be touched by cancer or any disease to be honest. Jy het maar ‘n klein hart is what my one friend told me.

Had to visit one of my Chemo Buddies in hospital. His white blood cells count took a huge dive on Friday. He was admitted on Saturday. He started to show the classic cancer face. I have seen him two weeks ago and today I saw another man and not oom Frank. It was one of those visits that the nurse said I could see him for 10 minutes, but just because I came from chemo. But I could not hold back the tears as I walked out the room. It is hard to say, but having to see the ugly face of cancer can break one.

Fastest chemo session ever. Just had 3IV’s and 120 pills for the next two weeks

We hope that it will be the case.We asked the medical aid to stop the payment as well. So will see with the next invoice what the tried doing or if they got it sorted

Starting a new treatment plan tomorrow. Went to the treatment centre to sort out a few things like medication that was ordered for me, and the medical aid paid for it, but I did not get the medication and the doctor stopped the treatment with the medication. So had to go there and explain to them why we are not going to pay R23000 for an IV I did not receive. Spoke to the pharmacy and the lady said they were not informed about the treatment change, but they will have the new treatment ready for me tomorrow morning. So will have to suck it up and take it like a man.

I will have to take it up.Just need to make 100% sure, but think I need to move to another oncologist. Only found the information last night on the KRAS detail, but now my wife says I am KRAS Negative, but I am sure Doc said Positive

Thanks Red Robin I lost a lot of trust in medicine to be honest. Just need to make sure if I am KRAS positive or negative. But if I am positive, I am moving to a new oncologist. Then my current doctor wasted R100000 for treatments that would have never worked for me.

Not sure, but think they stayed the same.Just for info, I stopped the cannabis during treatment for the past few months. The images on the CD sucks balls. Not even sure why they give the images as a image taken with a telescope is better than the images on the CD they gave me

Just a phone call. Sounds as if Avastin is more expensive than Erbitux. And slime bag tried to push a payment request through for the treatment plan that was stopped. Medical aid phoned and asked how I took the session yesterday and my wife said I did not have treatment yesterday. So it sounds like we have enough money for two treatments. The we have to pay 20% of the 4 requested treatments. Hope this time it works. Or else I am going to go full weed and nothing else.

Got some bad news. The Erbitux, FOLFOX, Folfiri and 5FU did not have the desired results that we hoped for. The tumor in my liver grew from 15mm to 19mm Waiting for the medical aid to approve the new treatment plan for Avastin and chemo tabs (hope it is not Xeloda) So feeling a little down and depressed at the moment. At least I can stop the antibiotics in a week. Will ask the Doctor if I can get in the sun and on my bike. This avoiding the sun does not work for me

Thanks for the message Chris. One thing that sucks about cancer is the amount of new people I see every time I get treatment. The last session I gave up my chair for a lady, because there were no open chairs in the treatment centre. They were filled beyond capacity. My treatment starts at 09h00 to about 16h30, but I am the youngest person getting treatment. And I was taught manners. Diabetes sucks big time! Don’t know if you heard about Marco Moolman yet. He is a avid cyclist with Diabetes as well. He was diagnosed at a very young age as well. Sad to say I have seen first hand (thanks to Steve Biko) what diabetes can do. Lots of grown men without limbs. And all because of diabetes.

Sorry guys. Was a tough day today. I do not cope well with MRI’s They gave me Dormicum to help rake the edge off. Got home, had a burger and fell asleep. Woke up at 18h00. The drugs just knocked me out, but needed the sleep. Will see the oncologist tomorrow to discuss the results. The MRI gave me a huge headache due to the noises. So will have to try to get that sorted as well. While waiting for the CD from the scan, we met a gentleman. Hi wife was diagnosed with breast cancer. Could at least tell him what to expect what chemo will do and what might happen and what is going to happen (chemo brain) Was kinda sad. They are in their late 60’s, and when he said he can’t be away from his wife for 6 months for the treatment, it just broke me. To see the love between them, was amazing...

We found it a bit lacking against the other seasons.And the bloody never ending song have been stuck in my head since this weekend. Oh and lets not forget Burger King and Coke being all over the place.

Just a update on Backabuddy that did not pay all the bills. Contacted them and the rectified it yesterday. Just hope that that was the last time. I do not want to owe the people attempting to save me money.

you know it!Hope the spleen and liver tumors shrank up with the treatments. But it sounds like Erbitux is a mean treatment.

thanks CBlake and thanks for the willingness for the donation. If it wasn’t for my wife and BikeHub I would have no reason to fight. But fighting as I don’t want to let you all down!

Just came from the oncologist. Booked an MRI for the 17th of July. If things look good (and the doctor is positive), he wants the stoma to be reversed. If the tumor reacted well it will be removed as well. So to be honest I can’t wait for the MRI results.

I think the admin side is a bit lacking.Will keep you up to date as soon as I hear something. The funds go to Back a Buddy. As we have expenses I send the invoices to them and they do the payment (or they are suppose to). But it seems (like most expenses that I need to pay before I get the medicine from Dischem, or devices from Cansa, or admission to hospitals) that needs to be claimed from back a buddy is a mission.

It seems the back a buddy platform is not as trusted as I thought. Tried to claim back money that I paid out of my pocket at Dischem and Cansa, and they paid only R1200 of the R2200 claims. So will keep you guys updated on this. If all else fails My wife said we can open an Investec account via her workplace (PSG) and get the funds dumped into a account there that we can then use to pay the bills. Just waiting to hear back from Back a Buddy...

Funny thing is (I did paper work sorting this morning) and the doctor said evaluation after treatment number 6 of 8. To be honest, I want to know if it is working as well. The side effects are worst than the cancer at the moment. I have lost most feeling in my hands and feet, and the constant headaches and sleepless nights are getting to me.