Coxsackie Virus

[mojopup]

Thanks for this topic! I habe suffered on and off with this for 12years and have never really treated it properly. Sadly it got bad last year before sani and affected my training, this year its worse.

 

The advice wheelsuck gave is sound and wise. Just to add to that: hydration is really important! Drink water or if you really flat have a ride drink in the morning. Also something I learnt today: exercise. Yes, move. Even if you are shattered, a bit of light strength work is good cause it helps the muscles and most importantly your mind.

[Wonder Woman]

_{Hey Wheelsuck, I ended up at Jon Patricious and went for bloodtests...also coxsacchie. At that time had been in and out of doctors offices all too much. when I went to him and found out the results was sent immediately to the cardiologist, thank goodness heart is still good.}

 

_{I was dizzy for over a month and took off many single days here and there from work. When I started exercising again I would do 20kms which took over an hour and would get home feeling like I'd raced 150kms. Sometimes it would take me a month to recover and be able to get back on a bike. Some days just to get up and bath was hard. I remember one friday I went to bed early and basically woke up sunday late morning still feeling like I had only had 2 hours sleep the entire weekend.}

 

_{It is now 6-7 years and I have NEVER gotten back to the form I had before I was sick. I still have bad days but my recovery is now a lot quicker and I can at least ride and even race if you get the training and recovery right.}

 

_{I have found that diet plays an important role as well, try stick to natural foods, lots of fruit and veg.}

 

_{To this day I'm still trying to find the right combination of vitamins and supplements to improve my performance but you eventually also learn and adjust to the lifestyle change. The nice thing is my body reacts as if I exercise a lot and I look slim and healthy and toned even though I do half if not a third of what everyone else does who I know.}

 

_{In my opinion, just keep fighting it and it gets better every day, every month, every year. learn to deal with the dpressive episodes, it is part of the disease and keep positive.}

 

_{Good luck there!!}

[Wonder Woman]

Go see a specialist physician, maybe someone on the forum can recommend one down in Cape Town as I only know the Doctors in Gauteng.

All the best

 

Surely the Sports Science Institute can help you out there.

 

Wish we had that up here!!

Edited March 7, 2012 by Wonder Woman

[Wonder Woman]

Thanks for this topic! I habe suffered on and off with this for 12years and have never really treated it properly. Sadly it got bad last year before sani and affected my training, this year its worse.

 

The advice wheelsuck gave is sound and wise. Just to add to that: hydration is really important! Drink water or if you really flat have a ride drink in the morning. Also something I learnt today: exercise. Yes, move. Even if you are shattered, a bit of light strength work is good cause it helps the muscles and most importantly your mind.

 

Fully agree with you there. Even if it's stretching, make sone feel so much better!!

[Slowbee]

does the virus only get hold of your heart?

 

a bit of googling said it can also attack you digestive system as well.

 

Can you send the blood away yourself for testing, or do you need to have it done through a GP ?

[Wheelsuck]

Slowbee to answer ur questons:

 

does the virus only get hold of your heart? In my experience it attacks muscles that are being stressed. In some cases where it detects a weakness, so many guys place the Heart under Pressure so it attacks that muscle but it attacks anything that is weak, landed of with severe tendinitis I think I can attribute to this.

 

a bit of googling said it can also attack you digestive system as well. As far as I know it spreads two ways: It lives in ur digestive tract and when ur immune system cannot fight it, its on u like a rash. Secondly and this is where u should be carefull Slowbee, (unless the littley is allready grown up (should be around 2 now?) is Faecal contamination, like cleaning babies and then it gets int ur system, or riding MTB and riding thru crap and it spills on ur Bite valve or Bottle and u ingest it. I am not familiar with it attacking the digestive system, but hey this is a very special little Virus so would not put it pass it. It also mutates and apparently goes into ur DNA (Not sure about this though) BTW Kids get this and can hadnle it better than we do...see my theory below.

 

Can you send the blood away yourself for testing, or do you need to have it done through a GP ?

GP as the lab tests, but maybe ur missues can test u

 

I have a theory about this Virus, and want to ask the folks who had the virus if they had any kids diseases, mumps, measles etc?

The theory is that the injections we got as littlies was so strong that our bodies started to not recognise the real virus's and in it's stupidity started killing off the good cells (Basic and unscientific I know but there is little known about this Virus-so any gues is good)

[Wheelsuck]

@ Wonderwoman and @mojopup, yeah exacly what I went thru but I am determined to beat the Virus and am at the stage where I manage the Virus. I agree with you that diet place a vital part. BTW u mentioned something that I forgot to mention is that I started getting depressed which is unlike me, and used a mild natural anti depressant which I would add to the Cocktail mentioned above. I like the hydration advive mojopup mentioned, makes absolute sense.

[CrazyChild]

I got it 18 years ago, it wasn't picked up at the time and a couple years later I picked up glandular fever.

The two of these combined with adrenal fatigue make for a nice combination.

 

The depression is what gets to me most, along with the constant fatigue, it makes for such a delightful combination - really sucks the life out of you.

 

The only thing you can do is boost your immune system and hope for the best. I have definitely found that somethings will work for a couple of months and then stop work, thats it and you are back at square one.

 

Eating right and drinking right and sleeping as much as you can see to be the biggest help, that and determination to get better.

 

The hardest part is trying to get people to realise that when you say you are tired its not just because you have had a late night, in fact you have had 10 hours if not more sleep, your muscles ache and you are shattered and feel the life has been sucked out of you, and that the simplest chore of getting out of bed is actually seriously hard work, So many people don't realise that fatigue is a disease as much as depression and flu are.

[Wonder Woman]

does the virus only get hold of your heart?

 

a bit of googling said it can also attack you digestive system as well.

 

Can you send the blood away yourself for testing, or do you need to have it done through a GP ?

 

Slowbee, my digestive system does get attacked as well. Last week Sunday I wasn't feeling great and that night had cramps and nausea and the next morning was man down, only woke up at 13:20.

 

I've given up on blood tests and doctors to be honest. everyone keeps telling em everything is fine, I know it's not.

[Wonder Woman]

a bit of googling said it can also attack you digestive system as well. As far as I know it spreads two ways: It lives in ur digestive tract and when ur immune system cannot fight it, its on u like a rash. Secondly and this is where u should be carefull Slowbee, (unless the littley is allready grown up (should be around 2 now?) is Faecal contamination, like cleaning babies and then it gets int ur system, or riding MTB and riding thru crap and it spills on ur Bite valve or Bottle and u ingest it. I am not familiar with it attacking the digestive system, but hey this is a very special little Virus so would not put it pass it. It also mutates and apparently goes into ur DNA (Not sure about this though) BTW Kids get this and can hadnle it better than we do...see my theory below.

 

 

That's what is worrying me, I have an 18 month old girl and wonder if she could get it from me from birth or if I can still pass it to her, really don't want that to happen. But as I've read they do seem to maybe get it strong initially but then seem to get over it unlike us.

 

Can only pray!!

[Wonder Woman]

I got it 18 years ago, it wasn't picked up at the time and a couple years later I picked up glandular fever.

The two of these combined with adrenal fatigue make for a nice combination.

 

The depression is what gets to me most, along with the constant fatigue, it makes for such a delightful combination - really sucks the life out of you.

 

The only thing you can do is boost your immune system and hope for the best. I have definitely found that somethings will work for a couple of months and then stop work, thats it and you are back at square one.

 

Eating right and drinking right and sleeping as much as you can see to be the biggest help, that and determination to get better.

 

The hardest part is trying to get people to realise that when you say you are tired its not just because you have had a late night, in fact you have had 10 hours if not more sleep, your muscles ache and you are shattered and feel the life has been sucked out of you, and that the simplest chore of getting out of bed is actually seriously hard work, So many people don't realise that fatigue is a disease as much as depression and flu are.

 

I also find that, they just don't understand!!

Even my hubby battles

 

After having my little girl I now know what sleep deprivation without the diseas in play is like and what the disease does and I'd much rather be sleep deprived any day.

 

It's nice to have someone in the world who actually may understand me a little and how much I struggle

[Face Plant]

wheelsuck if strengthening your immune system is the only way of treating it wouldn’t Beriglobin (Human Immune Globulin) be an option to try?

I’m not a doctor but logic says to me that if your immune system is compromised wouldn’t there be a benefit in using ARVs? I have used Beriglobin in the past which helps when your system is down.

[CrazyChild]

wheelsuck if strengthening your immune system is the only way of treating it wouldn’t Beriglobin (Human Immune Globulin) be an option to try?

I’m not a doctor but logic says to me that if your immune system is compromised wouldn’t there be a benefit in using ARVs? I have used Beriglobin in the past which helps when your system is down.

 

I have them lying in my fridge and I have to have them in batches of two. One doesn't always work and they aren't all that they are cracked up to be. Also they boost you a bit, so you think you are hundred, end up over doing it and then you are even worse off than before

 

I have friend who also suffers from this, and they don't work on her at all.

 

Its almost like this knows what your weaknesses are and attacks that, so for each person its different, which is also why I reckon it takes so long to know whats the cause. You are treated for the symptoms and not the cause.

[CrazyChild]

I also find that, they just don't understand!!

Even my hubby battles

 

After having my little girl I now know what sleep deprivation without the diseas in play is like and what the disease does and I'd much rather be sleep deprived any day.

 

It's nice to have someone in the world who actually may understand me a little and how much I struggle

 

I really hope for you it isn't passed on to your daughter, that would be awful but hopefully it has strengthen her immune system too.

 

This thread has been great knowing that its not just me, and there are others in the same boat.

 

I too have given up on blood work and my doctor - its just too expensive to be told the same thing over and over.

 

And I go with you sleep deprivation is far better than this fatigue.

[Heb Puppies]

Hi.

I was diagnosed last year with the coxsackie B2, and this year the B5 also got to me.

Know I am doing the specialist route.

I have a marble size growing on my thyroid. I have some sounds on my heart and I have a brother with MS.

So we are also testing the other hormones, the heart health and doing a MRI scan.

But what concerns me most is that you people are talking about viral counts of 600. Mine is 1200 for the B2 and 1600 for the B5.

I will ask my doktor about the counts. What is my biggest problem is, that I have to see how I use my muscles for coughing now that I have the flu again, as it have an huge effect on my heart muscles and you guys know, that after a session of exercise, you get very stiff and tires. So I try to hold the coughing back, but it is really difficult. I am also on a lot of vitamins. And is looking now into Encheaforce or Dr. A Vogel.

[thenoodle]

Does anyone know if the effects on the heart are an increase or decrease in BPM? My heart beats at 40 BPM (and I am definately not superfit) and has gotten progressively slower since a visit to the cardiologist in December (was43-46 BPM then). I do feel some of the other symptoms but always thought is was bad sleep/slow heart/stress/kids etc. I am now sick again, sore throat initially developing into cough and have chest and ear/jaw pain.

 

EISH!