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V12man

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Everything posted by V12man

  1. Todays news: Karmi - I will just leave this here. 2Bliss - currently being discharged from ICU - she is not going back to medical/surgical wards (probably AMA - but she has her reasons...) and will continue to be treated at home.
  2. Todays news - taken me all day to post unfortunately. Karmi - off the vent and breathing room air. Liver and spleen swelling reduced - swelling appears to be retained fluid only. Mom allowed to hold Karmi again - and for sure that will help Karmi and her parents a lot. So really good news but keep up doing what you are doing. 2bliss - still doped up but had no incidents in the last 24 hours so that is positive.
  3. Consider it a learning experience - make some plans with friends for the afternoon and evening - and the weekend - sitting around will not be good for you. But the worst is anticipating it - reality never quite matches up. Good luck!
  4. Karmi - no news - waiting for scan results 2Bliss - still in ICU - no progress Hopefully more and better news tomorrow.
  5. V12man

    RIFLE

    Join GOSA as a silver or better member - they will help you if and when you have issues with the CFR. http://www.gosaonline.co.za/
  6. Today's update: Karmi's condition is much the same and slightly improved as yesterday - still on the ventilator but plans are afoot to change her to a cpap machine post ct scan of her liver and spleen for a few days at least. She is holding down nutrition, but has a small bedsore that is resolving and she is watching tv from time to time. Still no diagnosis that I am aware of. As to 2Bliss - no further news at all.
  7. I think they are just trying to stay afloat....
  8. Todays updates - vaguely positive for a change: Karmi - still no diagnosis - she is feeding much better and seems to be holding it down. O2 sats are in the normal range but she is still on the vent. She is smiling and interacting a little with her parents. 2Bliss - still in ICU but responding somewhat better to new meds. Keep doing what you need to do to help them all - still a long road ahead.
  9. I am just going to leave this here.... Kenny Roberts on the TZ750... "https://www.facebook.com/titansofdirt/videos/273972296787096/UzpfSTEwMDAwOTUwOTU2MDM3MjoyMTQ4OTkzMTM4NzYwOTg0/" You will need to cut and paste.... can't figure out why the link won't work
  10. Todays update: Karmi - basically no news and still no diagnosis - waiting on results of liver biopsy and other testing is ongoing - she is still hanging in there. Remember to keep doing what you need to do to support her and her family, as well as her medical team - and to be grateful for your own families wellbeing. 2Bliss - her pancreatitis is improving following the withdrawal of her long term meds after 2 days - she has been admitted to ICU to help manage the side effects of the withdrawal, and to try to establish effective levels of the replacement medication.
  11. Just eat.... There is a limit to fluid emptying rates and carbohydrate uptake rates - just go for an intake of about 1g carbohydrate per kg per hour - if you take much more than that you are risking an upset stomach - and that doesn't end well.... You will also need to decide on if you plan to drink all the carbs, or follow a mixed eating and drinking strategy, and experiment with the exact products you are thinking to use to make sure they don't cause sh..t with your stomach - there is no substitute for testing of this in real world conditions. Properly fueled, you will be able to run harder after around 2 hours than if you are poorly fueled. (and this includes hydration)
  12. Use a heart rate monitor belt..... and run like f....
  13. Todays update: No change from yesterday - beyond surviving the bronchoscopy - she will be evaluated for liver function today, possibly including a biopsy. There is still no confirmed diagnosis, but efforts are ongoing. This kid is a fighter - don't forget to do what you need to do to support her and her parents! Do it twice.
  14. Slowbee is is in charge of the parents drive - There is a separate thread for that. I have no contact with the parents or inside info that does not come from 2bliss.
  15. Update: From Karmi's parents: Karmi' s bronchoscopy has been completed. One doc per lung. They had to stop frequently due to desaturation. The more mucous and dead material they got out, the better it went. She is stable, but obviously still on the ventilator. My contraction of the more detailed medical stuff: There will be further testing done when she is more recovered post this procedure. On 2bliss conditoon - She has developed pancreatitis from a chronic medication she has been taking for years. She is being stabilised on new medication which is hoped to be as effective eventually. She DOES NOT want this thread to be about her, so I won't expand on that - she knows you are all supportive and she is grateful for that, but keep the focus on Karmi.
  16. In Potchefstroom - but I don't know which facility.
  17. Hi all - 2bliss asked me to give a status update on Karmi. First - there has been little positive progress and Karmi is struggling. Second - Little Karmi will be going through the bronchoscopy procedure again tomorrow. This time two paediatric pulmonologists will attempt to pull it off. They are continuing to treat and test Karmi for all possible conditions and genetic problems but this is complicated by her current health status. Third - 2bliss herself is not well and is currently hosptalised but is hanging in there but not in a position to respond to all the posts - I will try to keep you all updated as and when I can. In the meantime please continue to keep Karmi and her family and friends in your thoughts- as well as 2bliss.
  18. Hang in there!! it will dull after a while - allow yourself some time and headspace.
  19. Better add 2bliss to your list too - if you dont mind. Trust me on this.
  20. I can always ask them to fire you.... :ph34r:
  21. Sandton
  22. No worries - we will get it organised - I just want to look at the frame first to see if it can be stripped apart and rebuilt without breaking plastic bits
  23. All good - I can collect from Andrew too - I know where he is (not far) - and Waterfall
  24. I will be happy to collect and deliver anywhere - pm me.
  25. F... IT - not good news at all - hang in there 2bliss and parents, we are all in your corner.
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