2bliss Posted September 26, 2018 Share Thank you, everybody. I'm sure all the good Hub vibes will contribute to another Bunny bounce-back really soon Today's bronchoscopy will be performed under general anaesthesia. They will do a "bronchoalveolar lavage". This involves flushing the lungs with saline and suctioning it out again. Wash, rinse, repeat, until the thick mucous is gone. Hopefully antibiotics will then be able to clear up the infections. They will also be repeating the CF "sweat test" at some point. I'm not sure about the reason. It might be due to the results not having been entirely conclusive the first time, or due to her clinical profile casting doubt on the results. @Tothehills: You should be a writer or poet! Andrew Steer 1 Link to comment Share on other sites More sharing options...
the nerd Posted September 26, 2018 Share Good luck to the family during this! Holding thumbs for the little one! 2bliss and Andrew Steer 2 Link to comment Share on other sites More sharing options...
2bliss Posted September 26, 2018 Share Okay, she went into theater at 11:22. So far we know that the CT scan showed she has almost no normal lung function remaining - everything is infected. Regarding the mucous, and these are the doctor's words: "It looks like PPC cement in there." Karmi will be going to ICU after they are done and it will take time to wean her off the ventilator. Will keep you guys updated as we hear more. They still have lots to do. Link to comment Share on other sites More sharing options...
Amberdrake Posted September 26, 2018 Share Thanks for the updates 2Bliss, Whenever things are bad one wonders how it's going and hoping everything turns out for best. Sepia and 2bliss 2 Link to comment Share on other sites More sharing options...
2bliss Posted September 26, 2018 Share Thanks for the updates 2Bliss, Whenever things are bad one wonders how it's going and hoping everything turns out for best.Indeed! We're really stressing. She hasn't been this sick since PICU. I keep checking my phone for news that she is in recovery or safely under the care of the excellent ICU staff. Link to comment Share on other sites More sharing options...
Andrew Steer Posted September 26, 2018 Share Thoughts with our little magical fighter, so sad that she has to go through all of this 2bliss 1 Link to comment Share on other sites More sharing options...
Benjamin Posted September 26, 2018 Share Indeed! We're really stressing. She hasn't been this sick since PICU. I keep checking my phone for news that she is in recovery or safely under the care of the excellent ICU staff.Hang in there Nicole. Thanks so much for allowing us all to be updated with this, you know all our thoughts are with Karmi and her mum and dad. Kalahari Vegmot, 2bliss, Andrew Steer and 1 other 4 Link to comment Share on other sites More sharing options...
Robbie Stewart Posted September 26, 2018 Share I pray that Karmi will be wrapped up in the hands of God during this trial, and she will come out stronger on the other side. He has a plan for her, to give her a hope and a future. I pray that His peace, that surpasses all human understanding, will under-gird the hearts of her parents, and that they will remain calm in the storm. I thank Jesus Christ that He creates life, and that He has blessed Karmi with another sibling, so that she can know the joy of having a friend for life. I pray that God will use the doctors as the instruments of His healing, and that He will guide every step that they take. fanievb, Kalahari Vegmot and 2bliss 3 Link to comment Share on other sites More sharing options...
2bliss Posted September 26, 2018 Share Karmi is now in paediatric ICU and on a mechanical ventilator. The procedure had to be aborted as she is too weak to endure it. They were able to take a sample of mucous for analysis, but could not clean out her lungs. The pulmonologist showed the CT scans to her parents and apparently they look terrible. There is a normal bit of lung the size of a R5 coin. The infected areas are surrounded by abnormal lung growth. There is even change to her main pulmonary artery. This is the best I can interpret Mum's distraught messages. She also used the term "bronchilitis deslycia", but as far as I can tell no such thing exists. Edit: Oh no, no, please pray for her or think of her or whatever you may believe in! They can't stabilise her! Edited September 26, 2018 by 2bliss Link to comment Share on other sites More sharing options...
Andrew Steer Posted September 26, 2018 Share Karmi is now in paediatric ICU and on a mechanical ventilator. The procedure had to be aborted as she is too weak to endure it. They were able to take a sample of mucous for analysis, but could not clean out her lungs. The pulmonologist showed the CT scans to her parents and apparently they look terrible. There is a normal bit of lung the size of a R5 coin. The infected areas are surrounded by abnormal lung growth. There is even change to her main pulmonary artery. This is the best I can interpret Mum's distraught messages. She also used the term "bronchilitis deslycia", but as far as I can tell no such thing exists. Too sad... my heart bleeds for this family. Can't imagine going through all this Keep fighting Karmi 2bliss 1 Link to comment Share on other sites More sharing options...
V12man Posted September 26, 2018 Share Edit: Oh no, no, please pray for her or think of her or whatever you may believe in! They can't stabilise her!F... IT - not good news at all - hang in there 2bliss and parents, we are all in your corner. Sepia, 2bliss, dannygirl and 3 others 6 Link to comment Share on other sites More sharing options...
Gen Posted September 26, 2018 Share I am keeping them (AND YOU) in my thoughts.. 2bliss 1 Link to comment Share on other sites More sharing options...
the nerd Posted September 26, 2018 Share I’m keeping you all in my thoughts 2bliss 1 Link to comment Share on other sites More sharing options...
Escapee.. Posted September 26, 2018 Share I’m keeping you all in my thoughts + 10000 2bliss 1 Link to comment Share on other sites More sharing options...
Sepia Posted September 26, 2018 Share Go Karmi. Jeez, this is hurting me. Cant even imagine how her parents are feeling.Hang in little girl. Andrew Steer, 2bliss and the nerd 3 Link to comment Share on other sites More sharing options...
Sepia Posted September 26, 2018 Share I am keeping them (AND YOU) in my thoughts..As Gen said. You are a star! Thank you. Link to comment Share on other sites More sharing options...
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