Cois Posted July 19, 2019 Share Have you discussed this with the doc? Are you considering reporting that doctor to the health professionals council for a bit of probing? there's a 100 thousand reasons to look a bit closely.I will have to take it up.Just need to make 100% sure, but think I need to move to another oncologist. Only found the information last night on the KRAS detail, but now my wife says I am KRAS Negative, but I am sure Doc said Positive Link to comment Share on other sites More sharing options...
Slowbee Posted July 19, 2019 Share Thinking of you Cois. Nothing like sheer anger to drive determination. Use that drive to fuel your will to keep going. And we are all still rooting for you! Hairy, cat-i and Steven Knoetze (sk27) 3 Link to comment Share on other sites More sharing options...
RobertWhitehead Posted July 19, 2019 Share Real sorry to read that things are not coming together, I know this sounds cliche but if the doc is not doing the right stuff by you, keep on searching. It is your body and your life and there has to be another doc out there that can get you the treatment you need. Time is of utmost importance here, all the best Snip Cois 1 Link to comment Share on other sites More sharing options...
Steven Knoetze (sk27) Posted July 19, 2019 Share Hi Cois, I think you shouldn't be scared to change doctors if you feel that way inclined. They are professionals and should not take it personally.Cancer is stubborn and sometimes requires change of protocols, that is also standard practice. They changed my wife's numerous times.We even sent away samples to Europe for genetic testing/markers which they then use to determine which treatment has a better chance for success. It was hellishly expensive at R40k. All in all, keep your chin up. There are many battles to win a war.You are in our thoughts and prayers still. RobertWhitehead, Cois, Edition 507 and 2 others 5 Link to comment Share on other sites More sharing options...
Edition 507 Posted July 19, 2019 Share Hi Cois, I think you shouldn't be scared to change doctors if you feel that way inclined. They are professionals and should not take it personally.Cancer is stubborn and sometimes requires change of protocols, that is also standard practice. They changed my wife's numerous times.We even sent away samples to Europe for genetic testing/markers which they then use to determine which treatment has a better chance for success. It was hellishly expensive at R40k. All in all, keep your chin up. There are many battles to win a war.You are in our thoughts and prayers still.Nice words of encouragement for you Cois, vasbyt, stay strong and you will endure these tough times and come out the other side healed. Cois, Steven Knoetze (sk27), Hairy and 1 other 4 Link to comment Share on other sites More sharing options...
Blackheart Posted July 19, 2019 Share HiIt's a kick in the balls for sure, but there's bound to be setbacks, and that's what it is - a setback.Time to re group and keep fighting.If you have lost faith in your Oncologist, by all means change, that's your prerogative and if you feel he's not fully behind you then probably a good idea.A change in treatment is not uncommon at all. I had 3 variations which were tailored as I responded. It's OK too, to be a bit down and disappointed, just try and leave that when it's time is over, then look ahead with a clear focus.I know that's easy to say from this side, but I've been where you are now and I know you can do it. Sending you power and prayers. BigDL, RobertWhitehead, LBKloppers and 5 others 8 Link to comment Share on other sites More sharing options...
Cois Posted July 22, 2019 Share Starting a new treatment plan tomorrow. Went to the treatment centre to sort out a few things like medication that was ordered for me, and the medical aid paid for it, but I did not get the medication and the doctor stopped the treatment with the medication. So had to go there and explain to them why we are not going to pay R23000 for an IV I did not receive. Spoke to the pharmacy and the lady said they were not informed about the treatment change, but they will have the new treatment ready for me tomorrow morning. So will have to suck it up and take it like a man. Jako De Wet, Steven Knoetze (sk27) and Red Robin 3 Link to comment Share on other sites More sharing options...
Steven Knoetze (sk27) Posted July 23, 2019 Share Starting a new treatment plan tomorrow. Went to the treatment centre to sort out a few things like medication that was ordered for me, and the medical aid paid for it, but I did not get the medication and the doctor stopped the treatment with the medication. So had to go there and explain to them why we are not going to pay R23000 for an IV I did not receive. Spoke to the pharmacy and the lady said they were not informed about the treatment change, but they will have the new treatment ready for me tomorrow morning. So will have to suck it up and take it like a man. The bill should be credited, or if they insist on payment then your account should be credited with the amount paid surely? Link to comment Share on other sites More sharing options...
Cois Posted July 23, 2019 Share The bill should be credited, or if they insist on payment then your account should be credited with the amount paid surely?We hope that it will be the case.We asked the medical aid to stop the payment as well.So will see with the next invoice what the tried doing or if they got it sorted Steven Knoetze (sk27) 1 Link to comment Share on other sites More sharing options...
RobertWhitehead Posted July 23, 2019 Share Good luck with the new treatment Cois, Escapee.. and Cois 2 Link to comment Share on other sites More sharing options...
Escapee.. Posted July 23, 2019 Share Good luck with the new treatment Cois, + 1 000 000 ChrisF and Cois 2 Link to comment Share on other sites More sharing options...
cat-i Posted July 23, 2019 Share Thinking of you today - hope the new treatment plan works like expected. Vasbyt. Cois and Red Robin 2 Link to comment Share on other sites More sharing options...
Cois Posted July 23, 2019 Share Fastest chemo session ever. Just had 3IV’s and 120 pills for the next two weeks RobertWhitehead, Steven Knoetze (sk27) and Wayne pudding Mol 3 Link to comment Share on other sites More sharing options...
Cois Posted July 23, 2019 Share Had to visit one of my Chemo Buddies in hospital. His white blood cells count took a huge dive on Friday. He was admitted on Saturday. He started to show the classic cancer face. I have seen him two weeks ago and today I saw another man and not oom Frank. It was one of those visits that the nurse said I could see him for 10 minutes, but just because I came from chemo. But I could not hold back the tears as I walked out the room. It is hard to say, but having to see the ugly face of cancer can break one. Steven Knoetze (sk27), Reg Lizard, BigDL and 2 others 5 Link to comment Share on other sites More sharing options...
RobertWhitehead Posted July 23, 2019 Share Sorry to hear, it's hard to see someone like that Had to visit one of my Chemo Buddies in hospital. His white blood cells count took a huge dive on Friday. He was admitted on Saturday.He started to show the classic cancer face. I have seen him two weeks ago and today I saw another man and not oom Frank.It was one of those visits that the nurse said I could see him for 10 minutes, but just because I came from chemo. But I could not hold back the tears as I walked out the room.It is hard to say, but having to see the ugly face of cancer can break one. Cois 1 Link to comment Share on other sites More sharing options...
ChrisF Posted July 23, 2019 Share Had to visit one of my Chemo Buddies in hospital. His white blood cells count took a huge dive on Friday. He was admitted on Saturday. He started to show the classic cancer face. I have seen him two weeks ago and today I saw another man and not oom Frank. It was one of those visits that the nurse said I could see him for 10 minutes, but just because I came from chemo. But I could not hold back the tears as I walked out the room. It is hard to say, but having to see the ugly face of cancer can break one. Cois my current project has me doing surveys in a hospital .... seeing those patients is an emotional roller coaster. Often you can SEE in a second if they are getting better, or expecting the worst. Thinking of you OFTEN Cois !! Hope and pray that your health takes a turn for the better !! Cois, Wayne pudding Mol, Red Robin and 3 others 6 Link to comment Share on other sites More sharing options...
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