Cois Posted October 24, 2020 Share Was discharged last night.My whiteblood cell count came down from 22000 to 8000. The range tops at 9000. So 22000 was very high. The doctor would have kept me there if it was higher. Was great to fall asleep in my own bed without a fat guy attempting to break the noise barrier with his snoring and an attempt to what he thought singing should be. Yeah he thought it was a great idea to sing along with his music (the nurse said he was not sick enough if he could sing). He also did not respect the fact that other people needed to use the bathroom. He would knock and then keep banging the door. I told him to fudge off on Friday morning while I was using the bathroom. And almost broke his hand yesterday afternoon when he kept on shaking the door and I lost it on my way out of the bathroom. Steven Knoetze (sk27), Wayne pudding Mol, Quagga and 10 others 13 Link to comment Share on other sites More sharing options...
The Ghost Posted October 24, 2020 Share Glad you’re home and that your count has come down so drastically. Cois 1 Link to comment Share on other sites More sharing options...
Red Robin Posted October 25, 2020 Share Glad you are home, nothing beats home and what an inconsiderate bloke you unfortunately had to share with. Cois 1 Link to comment Share on other sites More sharing options...
BigDL Posted October 25, 2020 Share Good that you’re home boss. Nothing beats your own environment Cois 1 Link to comment Share on other sites More sharing options...
Eddy Gordo Posted October 26, 2020 Share Was discharged last night.My whiteblood cell count came down from 22000 to 8000. The range tops at 9000. So 22000 was very high. The doctor would have kept me there if it was higher. Was great to fall asleep in my own bed without a fat guy attempting to break the noise barrier with his snoring and an attempt to what he thought singing should be. Yeah he thought it was a great idea to sing along with his music (the nurse said he was not sick enough if he could sing). He also did not respect the fact that other people needed to use the bathroom. He would knock and then keep banging the door. I told him to fudge off on Friday morning while I was using the bathroom. And almost broke his hand yesterday afternoon when he kept on shaking the door and I lost it on my way out of the bathroom.The one part I hate about hospitals!!! 2 bed wards are cool, but 4 upwards is a huge pain. Cois 1 Link to comment Share on other sites More sharing options...
Cois Posted October 26, 2020 Share The one part I hate about hospitals!!! 2 bed wards are cool, but 4 upwards is a huge pain.had to share a ward where one gent was busy with his Pico Prep and I had 4 flute Enemas in me. At a point, I was in another ward using the bathroom there. And that was a dance that the nurses had to manage.If you have a 4-bed ward at least have two toilets in the ward...But it is better than Steve Biko Hospital where wards of 6 - 8 people have to share 4 toilets! And here we are talking about 4 wards, not people sharing a very limited number of toilets. So it is not weird for patients to soil the floors on their way to the bathroom or while waiting for a bathroom... That said if the toilet was not used as a storeroom Eddy Gordo 1 Link to comment Share on other sites More sharing options...
Cois Posted October 31, 2020 Share If someone here goes by D de Lange. We need to thank you. Your donation will be used to cover the cost for the genetic tests that we are still waiting the results for. We can never say thanks enough for everyone that assisted us for the past few years. You restored our faith in humanity. Thanks everyone for your help. And thanks for fighting this disease with me. We would not be able to do this on our own. Edited November 1, 2020 by Cois MudLark, Andrew Steer, henningvr and 9 others 12 Link to comment Share on other sites More sharing options...
Cois Posted November 2, 2020 Share Just received feedback from the Oncologist...Pending approval I will start STIVARGA as a treatment option. The other treatment we hoped for did not respond to the tests. So we are waiting for Momentum to say yes or no and then I will be back on chemo. Eddy Gordo, cat-i, ChrisF and 9 others 12 Link to comment Share on other sites More sharing options...
The Ghost Posted November 2, 2020 Share All the best as always.If only words were enough to make this go away for you. Cois 1 Link to comment Share on other sites More sharing options...
Steven Knoetze (sk27) Posted November 2, 2020 Share Ai Cois, you really are on my mind and in my prayers.2020 has been a real douche of a year. Hoping some positives comes from it for all.Best of luck. Cois 1 Link to comment Share on other sites More sharing options...
Cois Posted November 3, 2020 Share Momentum rejected the new treatment plan. So much for getting tests done to see what treatment will work. The Oncology team is working on a new treatment plan, just hope Momentum will pay for that! Hairy, Andrew Steer, The Ghost and 1 other 4 Link to comment Share on other sites More sharing options...
ChrisF Posted November 3, 2020 Share Damnnnnn ???? Cois 1 Link to comment Share on other sites More sharing options...
The Ghost Posted November 3, 2020 Share Momentum rejected the new treatment plan. So much for getting tests done to see what treatment will work. The Oncology team is working on a new treatment plan, just hope Momentum will pay for that!So frustrating.Stay strong and all the best Cois 1 Link to comment Share on other sites More sharing options...
Cois Posted November 9, 2020 Share We received feedback from Momentum.The reason they rejected the treatment plan, is because we are not on a high enough scheme plan to get the treatment.The cost of the treatment is R241000 for 4 cycles of treatment. So they said I must move up to a better scheme plan to get the treatment. Cost will be about R3000 per month extra. So now we again have to wait for another treatment plan, and then hope that I would get approval for it. With the current plan, I can basically get the same treatment as I received at Steve Biko. Or that is what it seems like. Steven Knoetze (sk27) 1 Link to comment Share on other sites More sharing options...
Sheldon1 Posted November 17, 2020 Share Hi Cois, trust you doing well! Andrew Steer and Cois 2 Link to comment Share on other sites More sharing options...
Cois Posted November 17, 2020 Share Hi Cois, trust you doing well!Hi Sheldon At this stage, I am not sure how things are going. Momentum is full of poo! So I am still waiting to hear back from them on what treatment they are willing to pay for. Every day is still a struggle with my stomach problems. I have resorted to diapers as there are times where I do not make it to the bathroom in time. I am on the point of phoning the surgeon and asking for a stoma to be put back. At the moment I can only take it day by day. It’s not easy, some days are a lot harder than others. I am not sure if I will survive this beast inside of me anymore... Link to comment Share on other sites More sharing options...
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