gtr1 Posted October 7, 2020 Share Had a consult with the new oncologist today. He is going to request a test of the immunotherapy that he wants to start me on. So we will know if cancer will react to the therapy before we start with it. He has a plan B in place if it does not work. At least the doctor said that if the medical aid does not cover the therapy there are alternative options.So it is not like the other oncologist that ruined our finances.One thing is that the doctor thinks of his patients. He was worried about my pain levels (I am still very tender where the surgery took place) and said I was not going to get a gold star for living in pain. Will know next week what the results of the new therapy was, and will then know the path forward. Hi CoisHope you are feeling ok. Not sure who your new oncologist is. But Immunotherapy is grounbreaking. Do some research. I was diagnosed with Lymphoma 2 years back. Luckily caught it early. My doctor suggested immunotherapy. A lot less invasive, and without the side effects of chemo etc. A lot of fatigue on day of treatment and next day, but other than that was good. All I can say is it worked for me. I have been clear for over a year now. Not sure how effective for everyone, and for different stages of cancer. I was fortunate to get into a clinical trial for a new drug that was being tested for final board approval as well. Stay positive. Cois, cat-i, Steven Knoetze (sk27) and 3 others 6 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3719797 Share on other sites More sharing options...
Cois Posted October 9, 2020 Share My cousin just sent me these images for the Sun City Challenge tomorrow So I am in tears... Andrew Steer, cat-i, MrJacques and 15 others 18 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3721105 Share on other sites More sharing options...
Cois Posted October 13, 2020 Share I am utterly devastated. Received a call from the oncologist that I am not a candidate for the immunotherapy. He wants to do a genetic panel on my tumors to see if they will react to anything.Only problem... R20000 for the test. So now it is a hope and a prayer that Momentum will pay for the test Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722562 Share on other sites More sharing options...
Muttley Posted October 13, 2020 Share I am utterly devastated. Received a call from the oncologist that I am not a candidate for the immunotherapy. He wants to do a genetic panel on my tumors to see if they will react to anything.Only problem... R20000 for the test. So now it is a hope and a prayer that Momentum will pay for the testI've been following this thread and am still rooting for you to pull through all this nonsense! If you/someone will setup a backabuddy page - I'm prepared to donate R1000 towards the test... I'm certain between the gang here, we can come up with the balance if Momentum don't pay Andrew Steer, Cois, Long Wheel Base and 1 other 4 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722596 Share on other sites More sharing options...
Cois Posted October 13, 2020 Share I've been following this thread and am still rooting for you to pull through all this nonsense! If you/someone will setup a backabuddy page - I'm prepared to donate R1000 towards the test... I'm certain between the gang here, we can come up with the balance if Momentum don't payThanks MuttleyThe link I think is on the first page.But I think we can wait for Momentum. The guys and gils of BikeHub has been a tremendous help and they saved my life numerous times with their donations Muttley and Karman de Lange 2 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722609 Share on other sites More sharing options...
Riamich Posted October 13, 2020 Share Is there a backabuddy Cois willing to donate or contribute towards Cois and Dexter-morgan 2 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722619 Share on other sites More sharing options...
Andrew Steer Posted October 13, 2020 Share Is there a backabuddy Cois willing to donate or contribute towardshttps://www.backabuddy.co.za/champion/project/francois-marais Long Wheel Base, Cois, Patchelicious and 2 others 5 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722625 Share on other sites More sharing options...
Riamich Posted October 13, 2020 Share Sorry bud didn’t read prev post. Cois keep on fighting brother!!! Kick this C’s behind https://www.backabuddy.co.za/champion/project/francois-marais Cois and Andrew Steer 2 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722630 Share on other sites More sharing options...
The Ghost Posted October 13, 2020 Share I am utterly devastated. Received a call from the oncologist that I am not a candidate for the immunotherapy. He wants to do a genetic panel on my tumors to see if they will react to anything.Only problem... R20000 for the test. So now it is a hope and a prayer that Momentum will pay for the testSorry to hear, I really am.Let’s hope that you get some good news soon. Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722675 Share on other sites More sharing options...
Steven Knoetze (sk27) Posted October 14, 2020 Share I am utterly devastated. Received a call from the oncologist that I am not a candidate for the immunotherapy. He wants to do a genetic panel on my tumors to see if they will react to anything.Only problem... R20000 for the test. So now it is a hope and a prayer that Momentum will pay for the test Hey Cois, thats not good news but it also had no guarantee's of efficacy so keep your chin up.We did the genetic testing, for us it was R40k, sent to Europe for analysis. It is a great tool though, really helps to pinpoint a decent treatment route. Cois 1 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722734 Share on other sites More sharing options...
Cois Posted October 14, 2020 Share Hey Cois, thats not good news but it also had no guarantee's of efficacy so keep your chin up.We did the genetic testing, for us it was R40k, sent to Europe for analysis. It is a great tool though, really helps to pinpoint a decent treatment route.I and the SO talked about it last night.We will have the tests doen. According to the Oncologist, this is a new lab that opened in Midrand. They can now do all the tests here in SA. I hope that I might qualify for a trail. Not only because of the lower cost but also for being able to assist in a product that might save other cancer warriors. ChrisF, BigDL, Andrew Steer and 8 others 11 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722737 Share on other sites More sharing options...
Steven Knoetze (sk27) Posted October 14, 2020 Share I and the SO talked about it last night.We will have the tests doen. According to the Oncologist, this is a new lab that opened in Midrand. They can now do all the tests here in SA. I hope that I might qualify for a trail. Not only because of the lower cost but also for being able to assist in a product that might save other cancer warriors. That's great news, that this can be done locally now.Please share the name of the lab, if you know or find out. Best of luck, thanks for all the updates. Cois 1 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3722846 Share on other sites More sharing options...
Cois Posted October 14, 2020 Share That's great news, that this can be done locally now.Please share the name of the lab, if you know or find out. Best of luck, thanks for all the updates.It is called Oncolab. https://eurolab.co.za/innovation-technology/oncolab/ Same guys making some of my meds (Pecaset) that I used Steven Knoetze (sk27) and BigDL 2 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3723115 Share on other sites More sharing options...
Cois Posted October 19, 2020 Share Being admitted to hospital. Woke up with chest pains and severe abdominal pain at 02h00.Went to the office and it got worst. Called the doctor and went to see him. It might be fluid on my lungs but will do a few tests. So have yet another covid test to do as they are afraid that I might have covid as well. The doctor does not want me to leave the hospital today because I could get better or I could take a turn for the worst. Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3724804 Share on other sites More sharing options...
Red Robin Posted October 19, 2020 Share Being admitted to hospital. Woke up with chest pains and severe abdominal pain at 02h00.Went to the office and it got worst. Called the doctor and went to see him. It might be fluid on my lungs but will do a few tests.So have yet another covid test to do as they are afraid that I might have covid as well. The doctor does not want me to leave the hospital today because I could get better or I could take a turn for the worst. So sorry to hear and hope you get better soon. Cois, ChrisF and Andrew Steer 3 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3724809 Share on other sites More sharing options...
The Ghost Posted October 19, 2020 Share Being admitted to hospital. Woke up with chest pains and severe abdominal pain at 02h00.Went to the office and it got worst. Called the doctor and went to see him. It might be fluid on my lungs but will do a few tests. So have yet another covid test to do as they are afraid that I might have covid as well. The doctor does not want me to leave the hospital today because I could get better or I could take a turn for the worst.Ah no, sorry to hear.Strength to you, and hopefully you feel better soon. Cois 1 Link to comment https://forum.bikehub.co.za/topic/179564-diagnosed-with-stage-4-cancer-the-long-winding-road-it-has-become/page/59/#findComment-3724925 Share on other sites More sharing options...
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